Hugh Claus Memorial Run
DESCRIPTION: Hugh Claus, an Army vet and long time resident of Beachwood, lost his life to a rare disease called Amyloidosis in 2013. His daughter organized this 5K Run to raise money for Amyloidosis. All proceeds to benefit the Chip Miller Amyloidosis Foundation.
5K Run $25. / 5K Walk $15 / 1 Mile Fun Run $15. Register at chipmiller.org under events.
Same day registration starts at 7AM with price increase. Awards given to the top finishers and children under 12. All 5K runners and walkers can join the after party at Bum Rogers in Seaside Park.
My father Hugh Claus passed away in 2013 from a rare disease called Amyloidosis. Since I have joined the board of the Chip Miller Amyloidosis foundation to raise money for research and to spread awareness.
Each year 3000 cases of amyloidosis are diagnosed in the United States. Amyloidosis is generally a disease of middle-aged people and older, although the disease has been seen in individuals in their thirties. Men are more likely to be affected than women by a ratio of about 1.5:1.
With early diagnosis, the outlook for patients with amyloidosis has shifted to hopeful in the last decade. The early diagnosis allows treatment to begin before the amyloid protein build-up in the body becomes too great to overcome. Without treatment, the outlook for patients with AL amyloidosis is not good, many passing away within 18 – 24 months after diagnosis. Early diagnosis is the key to managing the disease.
Funds raised at events like ours, help researchers in their development of new ways to diagnose and treat this dreaded disease.
Any and all types of vendors wanted.
EVENT CONTACT: Patty Claus at firstname.lastname@example.org
WEBSITE: http://www.chipmiller.org – then click on Events.
2018 EVENT FACEBOOK: https://www.facebook.com/events/2023200231290796